The Johns Hopkins University is hosting an event which will not only build awareness of this rare disease - which causes deficits in coordination, gait, vision, and speech – but also raise funds which will be donated to the Clinical Research Consortium for Spinocerebellar Ataxia, and NAF efforts to build patient registries. We are also hoping to create a video game for the Kinect that is geared towards therapy for those afflicted with this terrible disease.

We will take any donations. If anyone is willing to donate anything or knows where I can find any donations, please let me know.

Thank you so much,

Ataxia Ambassadors